2022 will see the first ever Argonautes syndrome conference, we are so excited and hope you will join us!
When: The conference will take place August 24-28. The family-specific program will take place on Saturday and Sunday August 27-28 2022. The preceding days focus on Argonaute proteins and a scientific audience.
Where: Regensburg, Germany, and live streaming (on Saturday)
Who: For families and professionals. Patient families of Lessel-Kreienkamp (AGO2) and AGO1-related syndromes, researchers, clinicians, and other interested parties
How much: Free registration for patient families and (hopefully) hotel. Ideally we can also support travel costs, please email contact@ago2.org if you need financial assistance! If available, we will allocate stipends based on need and travel costs. We will know in June if our grant application was successful
Conference website: http://www.myrisc.de
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The syndrome-specific part of the conference is co-organized by AGO2 Association, Dr. Lessel, Prof. Kreienkamp, Dr. Piton (AGO1) and Prof. Meister (Argonaute proteins).
More details and registration to come.
Programme
Wednesday August 24
Thursday August 25
Friday August 26
Science conference on Argonaute proteins. Interested patient families are welcome to attend
Meet and greet for families, conference dinner for all attendees
Saturday August 27
Last session of the science conference on AGO1 and Lessel-Kreienkamp syndromes. Talks will be geared to a professional audience but families are welcome to attend
Session 1: AGO1/AGO2 research
Welcome and AGO2 Association news
Clinical spectrum, genetic basis and research update of AGO1 & AGO2 syndromes
Panel discussion and Q&A with Dr. Lessel, Prof. Piton., Prof. Kreienkamp und Prof. Meister
Lunch
Session 2: Patient perspectives
Keynote by Leslie Gordon, MD, PhD, who co-founded the Progeria Research Foundation after her son Sam's diagnosis. The foundation played a key role in isolating the gene involved and developing the first treatment
Panel with AGO1 and AGO2 patient families
Coffee break
Session 3 (tbd)
Optional interviews with families and speakers for awareness videos
Dinner at the hotel or close-by (not included)
Sunday August 28
The full conference programme will be available soon.
Venue
University of Regensburg. Universitätsstraße 31, 93053 Regensburg, Germany
Regensburg is a beautiful city in Bavaria. Its medieval historic town is a UNESCO heritage site. We recommend you save some time to visit it!
Regensburg can be reached in 1-1.5h from Munich and in 3.5h from Frankfurt.
More information on http://www.myrisc.de.
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