Science & Family Conference 2022

2022 will see the first ever Argonautes syndrome conference, we are so excited and hope you will join us!

When: The conference will take place August 24-28. The family-specific program will take place on Saturday and Sunday August 27-28 2022. The preceding days focus on Argonaute proteins and a scientific audience.
Where: Regensburg, Germany, and live streaming (on Saturday)
Who: For families and professionals. Patient families of Lessel-Kreienkamp (AGO2) and AGO1-related syndromes, researchers, clinicians, and other interested parties
How much: Free registration for patient families and (hopefully) hotel. Ideally we can also support travel costs, please email contact@ago2.org if you need financial assistance! If available, we will allocate stipends based on need and travel costs. We will know in June if our grant application was successful
Conference website: http://www.myrisc.de

To help us with our planning, please respond to this brief survey. Thank you. If you need to translate it, find how at the bottom of this page.

The syndrome-specific part of the conference is co-organized by AGO2 Association, Dr. Lessel, Prof. Kreienkamp, Dr. Piton (AGO1) and Prof. Meister (Argonaute proteins).

More details and registration to come.

Our goals

enhance understanding of the underlying clinical, molecular and biological characteristics of the AGO1 and AGO2 syndromes and of genotype-phenotype relationships,
foster ideas and collaborations for next steps in research that may eventually lead to novel disease-modifying therapies,
unite patient families,
disseminate learnings to raise awareness.

Programme

Wednesday August 24

Welcome for science conference

Thursday August 25

Science conference on Argonaute proteins

Friday August 26

Science conference on Argonaute proteins. Interested patient families are welcome to attend
Meet and greet for families, conference dinner for all attendees

Saturday August 27

Last session of the science conference on AGO1 and Lessel-Kreienkamp syndromes. Talks will be geared to a professional audience but families are welcome to attend
Session 1: AGO1/AGO2 research
- Welcome and AGO2 Association news
- Clinical spectrum, genetic basis and research update of AGO1 & AGO2 syndromes
- Panel discussion and Q&A with Dr. Lessel, Prof. Piton., Prof. Kreienkamp und Prof. Meister
Lunch
Session 2: Patient perspectives
- Keynote by Leslie Gordon, MD, PhD, who co-founded the Progeria Research Foundation after her son Sam's diagnosis. The foundation played a key role in isolating the gene involved and developing the first treatment
- Panel with AGO1 and AGO2 patient families
Coffee break
Session 3 (tbd)
- Family exchange
Optional interviews with families and speakers for awareness videos
Dinner at the hotel or close-by (not included)

Sunday August 28

Puppet theater show "The Great Coconut Robbery" with hand-made puppets (special show in English - thanks to fabulous Birgit!!)
Lunch in a "Biergarten"
Good-byes after lunch

The full conference programme will be available soon.

Venue

University of Regensburg. Universitätsstraße 31, 93053 Regensburg, Germany

Regensburg is a beautiful city in Bavaria. Its medieval historic town is a UNESCO heritage site. We recommend you save some time to visit it!

Regensburg can be reached in 1-1.5h from Munich and in 3.5h from Frankfurt.

More information on http://www.myrisc.de.

General information

Hotel: We have pre-booked rooms at the Novotel. Children up to 16 years are free. Rates including breakfast are 130-150 EUR/night. More information to come
Food: Dinner on Friday, lunch on Saturday and Sunday, and coffee breaks on Saturday will be provided at the conference. Dinner on Saturday is not included.
Language: The official language of the conference is English. We are looking into options for translation
Child care: We will have a separate space close to the conference room to meet up in. We will have some toys and volunteers in the room to assist with kids activities. Please get in touch for special needs.
Covid: We will respect local requirements regarding covid and are closely monitoring the situation to keep everyone as safe as possible. We hope the timing in August will allow us to hold an in-person conference.